Learning the language of Autism

 

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the lives of those with autism, the despair and the loss felt

 

This blog has been inspired by a young man who has a brother Milt (his nick name) who is severely autistic. He posted onto his facebook page a written piece from his heart, please see below this blog post: 

This post moved me to tears for a multitude of reasons. Firstly for his courage to write his truth.  He adores his brother and has as he says vowed to help make his life as positive as possible. It also moved me that he feels so helpless and cannot see a way out for himself and his brother.  

Yes there are many forms of autism and it manifests in a multitude of ways, for Milt it is severe.  I feel his pain and fristration as I too have felt it and sometimes still do. To move myself out of the way, meaning my usual thinking and instead replace it with something different can be, at times almost impossible. Bt I am learning more each day to embrace this way of thinking. I do this by exploring my own restrictions and barriers. I do this by listening to others with non verbal autism, with severe difficulties as Milt has, who have chosen to use a communication vice aid.  (Jeorge is still yet to engage with this)  

Although their lives are still very challenging and outsiders or strangers can cause so much distress by their lack of knowledge or mindset to be compassionate. Now, they have a voice to share why they express themselves the way they do, why they need to stim, what they feel , there is such wisdom within them. I mean real wisdom that all of humanity can benefit from on so many levels.   

The world at the moment is mostly geared up for those humans who are all seeing, hearing and fully able, in the 'traditional way' (my words and analogy) But we can change this by listening then learning how to change ourselves, see with a different viewpoint.  

I, of course do not have all the answers, I am too a parent with a child who does not use verbal spoken language, a challenge which sometimes is overwhelming to me. As well as the many sensory heightened abilities he has, which can cause him frustration and intense anxiety. But as i explore and meet others with an autism that was once to them a life sentence of despair and only despair is now unlocking their thoughts with technology today.  This unlocking is giving them a voice, a freedom never known before, an insight into the realms in which they can and are connected to at all times. Using other parts of their brains those without autism do not use.  

Surely this is a must, listen to, learn from opportunity, accepting the differences and therefore becoming less fearful of them.  I know this will not stop all of the devastating physicalities of some on the autism spectrum, but it can help by them knowing they are not just seen as broken or trapped.  Instead a different type of person with as much importance and need to be heard as the rest of humanity.  Brothers and sisters, mums and dads, like Janie Pickering are to be applauded for their love and honour of their loved and cherished family members whom are autistic. please read Janie's facebook post below.

 

This is my brother. He has autism. Like real, serious, life shattering autism.

He cannot speak. He knows some sign language and uses a machine to make simple requests.

He will never live alone. He will never drive a car. He will never have a meaningful spoken-word conversation. He will never hold a job without assistance. He will never be able to cook, clean, bathe himself, or use the bathroom without some degree of supervision and assistance. He will almost certainly never have a romantic relationship.

My mother and I will never hear him say "I love you." Because he can't. because he has autism.

BECAUSE HE HAS AUTISM.

Spend 20 minutes with him and you will not only see the depth of his personality and personal knowledge, but the extreme frustration in his eyes.

90% of his own family will never understand him in the slightest.

He has been taught to love and trust his therapists, teachers, and care providers, only to be tossed away and swept under the rug when things got too hard for them. FOR THEM.

Autism is a spectrum disorder. Not everyone with autism will have it as hard as Mit does. In fact, he has it a lot easier than many people with autism of comparable severity.

But this new wave of autism acceptance seems to forget a large sector of those afflicted. I don't mean to belittle or invalidate those on the other end of the spectrum. Autism is hard in all its forms. But this is something else entirely.

THIS is autism to me. And this is not something to be celebrated. THIS brings tears to my eyes every single day. It breaks up marriages and families. It COMPLETELY engulfs the lives of those involved. There is no way out. There is no promising future.

I will work every day of the rest of my life to give my brother the life he deserves. A life of happiness and fulfillment. But he will never have it. Not in the way that I will. Not in the way that you will.

This post isn't about vaccines. It's not about a cause or a reason that this happens. It's not about attention. We don't need your pity.

But we damn sure deserve your respect.
Don't tell me autism is a gift. 
Don't tell me it's not an epidemic. 
Don't tell me it's "God's perfect plan."

This is my brother. 
He is a perfect, beautiful soul in a terribly broken, autistic body.

autism - keep it or eradicate it?
The A word part 2
 

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