Learning the language of Autism

 

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the continuing search for therapies

searching for support autism

The common theme of all the autism families I have either met or read about in my various research avenues is that we are all searching for therapies. Endless searches, phone calls and emails.  This is with links we find along the way either recommended or we find by accident.  Some are from books we read and recommendations from friends and professionals who may be working with our child at the time. 

For me it is a combination of all above.  I have over the last few years increased my research, not only for ourselves but for Dazlious and other parents and carers.  This is also adding to my knowledge of autism in all its beautiful guises.

What does amaze me is even though I am searching online daily, I do still find incredible new items. Books, or stories of a family or a person with autism, a video made by an autistic person or a sibling. all beautiful inspiring stories of those touched by autism.  

Although there can be a lot of stigma attached to autism, along with bullying and suppression of those who are on the spectrum.  I see so much love and support for autism too.  The passion in and amongst siblings of autistic people is so strong.  Watching such videos and reading blogs is an uplifting and empowering feeling as well as an emotional one. 

This blog in particular is about not giving up the search for the therapy or concept/approach that will fit right in your own hearts, for your own family and person with autism.  There sure is not a one size fits all.  Thank goodness we have such a vast variety of blogs and support groups to join and communicate with.

When we cannot find one, we can crate a community ourselves, inviting like minded people along so each of us has a tribe a clan of loving supportive souls who and will be open and honest, share the good and the not so good experiences with.  

Along the years of being a mum of an autistic person I have met so many people, some of whom i will probably never met in person but in heart we have met and this is what is really important.  

In a time often with autism one can feel isolated from others with children without autism.  Not through anyone's fault or failure but purely for the vast differences in the children's needs and capabilities in coping with the typical play activities mums and dads meet at with their kids.

This is where internet comes in really handy.  Blogging and skyping with others who understand and share your experiences without judgement but instead with an understanding that is usually a very hard concept to understand unless you live in it.

I remember, at first diagnosis being so overwhelmed with searching for groups and advice on autism. There was so much that my head would spin and get so confused as to what the 'right' idea or plan was to take with Jeorge. Being honest, I almost drove myself nuts doing this.  Adding to this the numerous books I was reading, all of which at that time were very negative and scary books. This was not helping me, I would find myself watching you-tube videos of people on the spectrum being bullied or abused in care homes.  Not a very healthy or helpful avenue for me to go down.  It created a fear inside of me that became so huge I was genuinely scared for Jeorge's future. 

Once I realised this I stopped and luckily the internet being so vast, I found the more positive and helpful searches. 

So yes, there is something for everyone and if there is not, it can be created.

So this blog I guess is more about not giving up on finding information and links, resources, friends and concepts that can aid the life of your family and person with autism. New ideas and books written are popping up everyday. I feel now I am experienced at this autism lark, it is important to stop searching too, sometimes.  Trust that you are doing the best you can at that moment.  Trust that the decisions you make are valid and right for you and your child at that time.  Trust that inside you know what action to take.  Searching outwards is great and helpful.  Trusting oneself is even more helpful. We can gather ideas from others and read books with concepts and different therapies to try.  I see them now as tools to add to the huge bag I have.  some tools will always be in that bag, I will pull them out when needed.  While others will be used once maybe for a time then never used again. Some never used but there to remind me to keep my mind open and my heart trusting. I am still learning and listening to other and to my own heart. I watch and listen to Jeorge too, he shows me so much , well everything.  As he speaks in a completely different language to me, sometimes it takes me a while to understand him.  But I trust that I will get there. 

 

 

 

parents sharing their childs progress
autism - keep it or eradicate it?
 

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