Learning the language of Autism

 

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Autism Matters

We welcome you and look forward to you joining our community to share, explore and learn the language of autism...

Magic

Magic happens a lot, in fact it is around us all the time. I believe anyway. The magic I speak of today is the flow that happens between Jeorge and myself.  Through the world of his non verbal and my verbal communication often mishaps, misreadings, total misunderstandings and even chaos can endure our daily lives together.  Yet, amongst all that is too the moments when without words we connect magically like the entrainment of two harmonies or musical instruments. 

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helplessness - a sinking feeling

Christmas holidays for me this year were challenging.  Mostly because of my personal circumstances. I feel this added to the often 'settling into' the holiday routine for Jeorge. 

Jeorge is incredibly sensitive to others feelings, meaning he can 'sense' any disharmony within a person.  He may not agree with the disharmony, by that I mean feel it is necessary for one to feel that way.  Or it could be he simply finds it too heavy or scary. I have learnt this over the years about Jeorge.  He also shows compassion and gives cuddles and strokes to you if there is a feeling of deep sadness, heartfelt. 

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Differing professional attitudes

A few years ago when Jeorge was around 3 years old, diagnosis was very new in our lives, we met many professional departments. Some were very helpful and positive while others were less so. I thought I would blog about to very opposite levels of attitude.

We were kindly offered some home care hours for Jeorge. A very nice and friendly lady came to assess us and see what Jeorge and I needed. It was agreed that Jeorge would receive 3 hours each week of home support. We went through everything we could think of carefully. I explained Jeorge had challenges with wearing clothes all the time. So at home he didn’t wear any. He coped whilst we were out and about and at nursery, as soon as he was home he would strip off and felt calmer and happier because of it. We were told this was perfectly fine and would be of no concern to the support workers. I was always present during the visits anyway as this was about family support.

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Routine changes-best intentions

Fresh off of the press in our lives this morning. Jeorge became confused when Dad came to pick him up to take him to school.  Unusual for the upset as this is what happens every Thursday.  Except this Thursday was different because Jeorge believed it was Friday.  Why? 

Due to my changing timetable I asked Jeorge's dad if he could collect Jeorge from school Thursday and keep him overnight, making it an nights sleep over with him.  He would then take him to school Friday.  This was confusing as I usually collect from school everyday except Friday, when dad does that.  Dad doesnt take Jeorge to school on a Friday I do instead.  I thought I had done everything I could to help avoid Jeorge being confused.

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Monday, 08 October 2018 12:42
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labels-imagining a world without them

‘Hi, let me introduce Kerrie, she’s a vegetarian’, Hi, this is Jeorge he is autistic, Hi, I am Billy and I am a builder’

We find fitting into categories and labelling ourselves a common and familiar activity. We even accept labels given to us from others within a few minutes of meeting each other.
I often imagine an existence here on earth where we abandon those labels completely. The more deeply I think about this I realise we would all need to ask ourselves these questions before we could simply declare all to others.

‘Who are you?’ ‘What do you do?’ are the typical questions we ask each other in any new social situation. When someone asks me this I often feel like saying I am from star dust, planet earth or, ‘well I do breath and I ‘am’. This is partly because it is what I believe but also because I tire of the usual ‘I do this and you do that’ conversations as if they define us.

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